11 Comments
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Patricia Ericson-Tayor's avatar

Thank you Robin for sharing your beautiful

Robin Lanzi's avatar

Patty, thank you so much for your beautiful words and for always being such a dear friend. Your kindness and encouragement mean more to me than I can adequately express. I am so grateful the piece resonated with you, and even more grateful for you. Your support, warmth, and friendship have always meant so much to me.

Smitha's avatar

This story is deeply touching and inspiring. Robin, you have such a keen eye for observing the subtlest nuances, and an equally beautiful way of articulating them. Thank you for sharing your experience with the world — it truly deserves to be read by many.

I shared this piece with a few friends, and each one wrote back saying how moved they were. The article helped me and them reflect - on our own relationships, health and the meaning that exists in the spaces in between.

Robin Lanzi's avatar

Smitha, Thank you. Your words about noticing the “spaces in between” capture so much of what I hoped the piece might hold. I often worry whether those quieter nuances translate beyond my own experience, so hearing that it resonated with you and with the friends you shared it with means more than you know. I am deeply grateful for your kindness, your careful reading, and for taking the time to write something so meaningful back to me.

Rose Mary Lanzi's avatar

So well written. I know. I lived through it. Witnessed the love and caring for each other. 🙏

Martin Marprelate's avatar

This was one of the very few articles on Substack that I’ve read all the way through. There’s great truth in it. Physiologically and in communion.

Robin Lanzi's avatar

Thank you so much for taking the time to read it all the way through. That means more to me than I can express. I was trying to write honestly about the quiet spaces where physiology, emotion, relationship, and meaning intersect, so your words about truth “physiologically and in communion” deeply touched me. I am truly grateful for your reflections and kind words.

Julie King's avatar

Beautiful. I can't help but think the AHA Framework and Well-Being Tool would be a beneficial addition to current perspectives on PANS/PANDAS.

Robin Lanzi's avatar

Thank you, Julie! Happy to share and/or discuss with the PANS/PANDAS community. Thank you for thinking through. Robin

Cathy Maxwell's avatar

What a wonderful story about this family! Thanks for sharing!

Robin Lanzi's avatar

Thank you so much for your kind words!